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Patient Events
Event Registration
SAVE THE DATE
The 5th Annual Holiday Party
Sunday, 12/8 from 1 - 4 p.m.
Greycliff, Moonachie, NJ.
Make a weekend of it! Folks can experience NYC during the holidays with an easy river crossing to view the Rockefeller Center tree, festive window dressings, shopping, and more.
Our goal is to celebrate our many blessings to bring families and friends together for a memorable occasion to benefit the foundation. If you are interested in volunteering as part of the holiday committee, please contact spetrassi@tsfusa.org. We hope to see you there!
FREE PATIENT AND CAREGIVER WORKSHOP PROGRAMS
The purpose of patient workshops is to provide education, information and support to patients and their caregivers by experienced and knowledgeable providers. Turner Syndrome Foundation workshops have been organized since 2009, and reach patients in communities where they live. Many families travel a great distance to increase their understanding, gain new perspectives and learn about current resources. Please join us by registering today. If you have any technical difficulty registering online, call 1-800-594-4585 to register by telephone or email info@tsfusa.org.
New York
WHEN: Friday, August 2, 2013
WHERE: Children's Hospital at Montefiore
Bronx, NY
TIME: 11 a.m. - 4 p.m.
TOPICS: Care and management of girls with Turner Syndrome, Pediatric Endocrinologist, Cardiologist, Psychologist, Dentist, and a supervised children's program
REGISTER: Every guest must register
New Jersey
WHEN: Saturday, September 21, 2013
WHERE: Jersey Shore University Medical Center
Neptune, NJ
9 a.m. - 12 p.m.
TOPICS: Dr. Margarita Smotkin - Tangorra, pediatric endocrinologist: Care and management of girls with Turner Syndrome
Dr. Stephanie Chin, pediatric cardiologist, Ellen Jane Reinerstein, registered dietician, Carol Porter, social worker, and a supervised children's program
REGISTER: Every guest must register
View complete list of events
Do you have an idea or event you would like to promote? Email details to info@tsfusa.org
Patient Testimonies
“Beyond learning more about what is happening inside me, I met a lot of great people. I felt immediately welcomed into the TSF community with open arms. I never felt judged, which often happens being the shortest person in a room. Furthermore, I met other girls with TS for the first time in my life. I finally didn’t feel like I was alone. I could talk candidly with them about what I am going through and what I went through as a child. I’ve never felt comfortable doing that with my friends. Sure, I’ve told a few close friends what TS is and that I have it, but I’ve never went much further. As I said, I just never felt comfortable talking about something so personal. “ Jennifer
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