The links provided are for informational purposes only and are not endorsed by the Turner Syndrome Foundation. As new information becomes available, it will be uploaded. Feel free to contact Turner Syndrome Foundation to provide additional sites that may of interest to the TS community.

Professional

Are We Providing State-of-the-Art Care for Girls and Women with Turner Syndrome?

Clinical Practice Guideline

Health Supervision for Children With Turner Syndrome

Laboratory Guidelines for TS

Strategies for Early Diagnosis of Turner Syndrome


New Techniques Offer Valuable Tools in Analysis of Congenital Anomalies
Uteteropelvic junction obstruction and calyceal diverticulum in a child with TS and horseshoe kidney
TS in Adulthood
Surgical management of otology disease in pediatric patients with TS

Education

College Options for People with Learning Disabilities

LD Online: "Worlds leading site for learning disabilities"

New Jersey Department of Education Office of Special Education

Orton Gillingham (OG) Education Instruction
Protecting Students With Disabilities  

Statewide Parent's Advocacy Network

Wrightslaw Special Education Law & Advocacy

Medical Links

American Academy of Pediatrics

Cardiovascular Problems in Turner Syndrome

The Human Genetics Association of New Jersey

Lymphedema

MedlinePlus: Turner Syndrome

JOIN the National Osteoporosis Foundation

United States National Institute of Child Health & Human Development. Division of Research

Lawson Wilkins Pediatric Endocrine Society

Growth-Promoting Strategies in Turner’s Syndrome

Social and Learning

Building Genuine v. Phony Self Esteem

IDEA Partnership - Work & Learning

Maple Leaf Center

Non Verbal Learning Disorder(NVLD)

Social Skills Curriculum

Resoures

Advocacy - Letter of Intent

Center for Interdisciplinary Brain Sciences Research

Gracie's Law in NJ ~ Coverage for medically necessary expenses incurred in the purchase of a hearing aid for covered children 15 years of age or younger.

Parents Advised On How To Detect Communications Disorders In Their Children

Turner Syndrome Guides

Clinical Practice Guideline for TS

Research

Estrogen Study

Nemours Children's Clinic Parental permission for participation in a resaeach study

Clinical Trials

Stanford U. Interdisciplinary Brain Sciences Research

Turner Syndrome Genotype-Phenotype Study at the NICHD

Estrogen Replacement in Pubertal-Aged Girls with Turner Syndrome

Initiating Transdermal Estradiol Therapy in Turner Syndrome

JS Genetics Clinical Trial

Pharmaceutical

Uninsured in NJ
Lilly
Genentech
Genotropin
Novo Nordisk
Serono - Saizen

Books

TS: Across the Life Span

Healthcare Advocacy Across the lifespan

Support Groups

TS Parents

Petit Clothing

Cinderella of Boston

For Petite Sake