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About Turner Syndrome Foundation

We understand babies born affected by TS require a lifetime of special care beyond the pediatric setting and, for many, there are hurdles in obtaining a diagnosis early enough in life to receive critical health screenings and timely interventions, and more importantly to find knowledgeable providers to care and support their individual needs through all stages of life.  We see a void in transition from pediatric to adult care, and its effects on those with the disorder and their community.

The Foundation’s advocacy efforts identify these gaps and give voice to leaders who can make a difference.  The vision to improve the understanding of TS and to render support for women and children living with TS is made possible by advancing communications and inspiring relevant interest in this women’s health issue.

Quick links:
Our History
Mission Statement
Programs and Services
Governance and Reporting

Mission Statement

Tag Line:
Turner Syndrome affects 1 in 2,000 females.  We can help.

Turner Syndrome Foundation
Mission Statement:

The goal of the Turner Syndrome Foundation (TSF) is to support research initiatives and facilitate education programs that increase professional awareness and enhance medical care of those affected by Turner syndrome.   Early diagnosis and comprehensive treatments over the lifespan may lead to a brighter and healthier future for all young girls and women with Turner syndrome.

TSF is a registered 501(c)(3) nonprofit organization

"First a baby, soon a growing child, and finally a woman, our efforts must transcend the Turner Syndrome life span."

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The Foundation is governed by a volunteer Board of Directors and is advised by a volunteer Medical Board. A few individuals with subject expertise serve on an advisory council. The Executive Director ensures advancement of the Foundation’s programmatic objectives, development and fundraising goals, and manages all staff and volunteer leaders.

Get to know the:
Board of Directors
Medical Advisory Board
Legal Advisory Board
Executive Committee

The Foundation relies on a considerable body of volunteers to execute many of the programs and services we provide. This enables us to be better stewards of our donors’ gifts. 

Our core Talent Management Team oversees nearly all the volunteer work in fundraising, and volunteer development, online community forum, national TEAM TSF athletic events, Treats and Sweets Bake Sale, patient education material distribution, newsletter and other communication and awareness programs. Time and talent are needed in these and other areas, either on an ongoing or short-term basis.

Learn how you can apply to volunteer, participate, or lead a program initiative as an individual, community or professional in a capacity that suits your interest and ability.  Learn how you can VOLUNTEER

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Our Programs

                 Awareness    Turner Syndrome Awareness Movement
                 Advocacy      Speak up, speak out. Lending voice to issues that surround TS
                 Education     Learning about Turner Syndrome to improve outcomes
                 Research      Investment in her future. Participate in a study.

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Governance and Reporting

Annual Reporting

The Turner Syndrome Foundation is guided by standard practices to maintain fiduciary responsibility and transparency to its donors. Information is provided upon request.

By-laws and Articles of Incorporation 
For a copy of the Turner Syndrome Foundation's by-laws and articles of incorporation, please write us at: Turner Syndrome Foundation, PO Box 726, Holmdel, NJ 07733
Learn about TSF Policies 


Ways to Get Involved

There are many ways to get involved. 
Give through one of our giving programs

Give Now


About Turner

Get Diagnosed

Living with TS

Ways to Get Involved



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