“In medicine we cannot always cure, but we can always care.” Frances Salerno, MD
Communicating often-complex medical concepts to patients is the cornerstone of effective care for patients and their caregivers. Each diagnosis has an individual story and outcome… The Turner Syndrome Foundation has developed this resource page to assist allied health professionals.
It is estimated that one in 50-100 girls with short stature have Turner Syndrome. Thus, experts in the field recommend short girls less than the 5th percentile in growth are tested for this condition. Unfortunately, the majority of girls are not diagnosed until after 10 years of age. Furthermore, Turner Syndrome is not typically identified until after 7 years after short stature has been clinically evident. As such, final height will be compromised by late interventions with adjunctive growth hormone therapy. Increasing evidence suggests that height outcomes can be markedly enhanced with early recognition of Turner Syndrome. Additionally, Estrogen and progestin therapy is also delayed, resulting in delayed onset of pubertal development.
Healthcare Provider Registration
Patient Registration English Spanish
Guidelines in caring for patients with Turner Syndrome
We would like to invite knowledgeable and caring providers to be part of the Turner Syndrome Foundation's allied health professional task force. There are many ways you can contribute to improve care outcomes; primarily, by diagnosing girls as early in life as possible; following the recommendations of the NIH Clinical Guidelines; staying current on new findings in clinical research; and supporting the cause.
CONTINUING MEDICAL EDUCATION
Recognizing the importance of continuing education for healthcare professionals related to identifying and managing Turner Syndrome, TSF is working with several partners to develop certified CME/CE activities to address this need.
On online webbased activity on Medscape
Link to CME Activity
Order a clinical poster with common manifestations found in Turner Syndrome
Initiating Sexual Development
Transitioning Patients from Pediatric to Adult Care
Planning for and administering a transition from pediatric to adult care involves the patient, parent and provider.
Tools have been adopted for thoughtful planning and will be forthcoming on Endocrine Societies Transitions of Care Site
Specialized Centers of Care for Patients with Turner Syndrome
Living with TS
Events: Patient Professional By State
Ways to Get Involved