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Benefits of Registering with TSF
Education – Information- Support

Patient Registry

Patients are invited to join the Foundation’s patient registry.  Studies derived from patient registries can provide a real-world view of clinical practice, patient outcomes, safety, and comparative effectiveness and cost-effectiveness, and can serve a number of evidence development and decision making purposes.

Patients can receive the monthly eNewsletter, stay informed, receive invitations to education and research opportunities, and learn ways you can make a difference through our Team TSF activities taking place across the country.  Patient Registration  Patient Registration SPANISH

Professional Registry

Providers are invited to join the Foundation’s professional registry. Physicians, educators, researchers, industry and policy makers. Stay up-to-date on current information, conferences, workshops and community activities.  Your involvement can directly impact the future of Turner Syndrome. Healthcare Registry 

E-news Updates
When you register online you can also sign-up for upcoming TSF e-newsletter updates on TSF educational events, special events, and volunteer organized events scheduled throughout the country.

Your input on issues surrounding TS are important to understanding and defining programs.

Social Media and Group Forums:
Facebook  Twitter  Instagram  Linked-In  Blog,  Youtube  
The Foundation does not control nor does it assume the responsibility to monitor the comments and interaction provided on social networks.  

Student School Research Project
In an effort to assist you with obtaining information to complete a school project on Turner Syndrome, please complete this form and submit without delay. We will do our best to respond in a timely manner. Thank you and good luck with your studies!
Student Information Request Form

Leadership, Committee, Community, Fundraiser, TEAM TSF, Bake Sale, and more..
Learn more about getting involved. Volunteer opportunities

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